(Material that has already been sent in and included in a study cannot be withdrawn, however.) The company says most of its 5 million users opt in. On average, their material is used in more than 230 studies on subjects such as Parkinson’s disease or lupus, according to the company’s website.The point of collaborating with pharmaceutical giants is to give researchers access to a database of genetic and personal information that’s much, much larger than what is typically available. Researchers can then try to identify new links between traits, diseases and genes and ideally, use that knowledge to inform therapies.23andMe pitches customer participation in research as a chance to positively affect health care.Some, however,see a lot to be concerned about.Speaking withNBC News,Peter Pitts, president of the Center for Medicine in the Public Interest, suggested 23andMe customers be paid for opting in to the research.”When two for profit companies enter into an agreement where the jewel in the crown is your gene sequence and you are actually paying for the privilege of participating, I think that’s upside down,” Pitts said.He also questioned the steps 23andMe has taken to ensure customers’ privacy a risk the company also flags for customers.

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